Author: David Musser
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And The Darkness Comprehended It Not
Over Spring Break last month, I took the kids to Mammoth Cave. For those that don’t know, it’s the longest known natural cave system in the world—over 420 miles of intertwining network. We spent 4 hours hiking 250 feet below the Earth, covering just 4 miles of the system and taking on some 1,600+ stairs.…
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Songs for Becky
Exodus 34:4-8So Moses cut two tablets of stone like the first. And he rose early in the morning and went up on Mount Sinai, as the Lord had commanded him, and took in his hand two tablets of stone. The Lord descended in the cloud and stood with him there, and proclaimed the name of the Lord. The Lord passed before him and proclaimed, “The Lord, the Lord,…
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Choosing The ‘Life Narrative’ For My Daughter Living With Trisomy 18
Up until the last few years, Trisomy 13 and 18 have been among a few congenital syndromes that medical texts and experts deemed to be “incompatible with life.” It therefore has been a common practice for families and physicians facing this diagnosis to either choose abortions or to withhold certain medical interventions that would otherwise…
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Christmas in…December?? (And Other Reflections on THREE Years of Caregiving (!!))
Y’all. It finally happened. Christmas in JulyDecember! Today was the day that we finally had our Sleep Safe Bed delivered! (after months of back and forth with insurances, social workers, providers, medical supply applications, medical supply personnel, decisions—endless phone calls (ie, waiting on hold, listening through queue after queue of not-actually-helpful robot answering services)—endless rigmarole…
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Stillness
So, when was the last time you sat and flipped through an entire Where’s Waldo? book—finding Waldo, Wenda, Woof, Wizard Whitebeard, and Odlaw on each page before continuing on through the book? (Ok, Fine, we didn’t always find Odlaw…that sneaky little mustachioed devil…). I am guessing for most of you, it has been at least…
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By ‘n’ By [Hard Times Comes A-Knocking At The Door]
Well Folks, we are back in the Bluegrass! It is sorta strange being back somewhere so familiar after being away for 8 years. A whole lot has changed and a whole lot has stayed exactly the same! Eliana was coloring a picture recently and made the entire background blue with a horizontal “horizon” line across…
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The War Within
[full disclosure, I started this post over a week ago, so I hope you can track with me despite my publishing delay!] Wow. Since I last checked in with you all, the entire month of December 2023 has come and gone. Highlights: Lowlights: I think you could make a case that this was the hardest…
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Bone Scans and Dad Hacks
Well, in the month since my last post: Izzie spent a week in the children’s hospital fighting an upper respiratory virus, Katie traveled to a conference in Kentucky for several days, we celebrated Izzie’s 2nd birthday (!!), we hosted some family over the week of Thanksgiving (my highlight was watching the new Ninja Turtles movie…
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What Caregiving Feels Like…
Have you ever run a marathon? I hope your answer is a forceful: NOPE! Or just a good ole fashioned thumbs-down would also be an appropriate response. (Need I remind runners everywhere that the first guy to ever run a marathon died immediately afterward?!) Marathons are famously 26.2 miles. While I technically have never run…
